This is my daughter, Morgan, when she was first diagnosed with Celiac in 2008…
As you may be able to tell, I modeled the illustrations of the little girl in the book after her.
A “Silent Celiac”, she looked and acted healthy enough, but like all Celiacs, the damage was happening inside, regardless of her lack of outward symptoms. Had I not been diagnosed first, who knows how many years it would have been until we figured out she had it? Therefore, we have always felt blessed that this was discovered in our family, and thankful that we are some of the few people who were actually accurately diagnosed with celiac, while millions remain undiagnosed or misdiagnosed.
When I was first found out I had Celiac, I devoted many months to learning all I could about it, and armed myself with as much knowledge as possible.
Here are some links to some of my favorite online learning tools:
From the Wm. K. Warren Medical Research Center for Celiac Disease —
Excellent Q&A about Celiac and children
From the Celiac Disease Center at Columbia University —
Kids’ Corner: Celiac Disease Center at Columbia University: FAQ for kids
Learn about CD and villi: Celiac Disease Center at Columbia University: CD & DH
From the National Foundation for Celiac Awareness —
Celiac disease resources
From the National Digestive Diseases Information Clearinghouse (NDDIC) —
Great explanation of CD with helpful diagrams (website loads slow but is worth the wait)
Celiac Family Health Education series from Children’s Hospital Boston: Wonderful
series of twelve videos, including interviews of Celiac kids and parents, cooking,
eating out, school and shopping tips, emotional adjustment, etc:
Children’s Hospital Boston
Great video series for newly g-free families from Celiac Diva and Schar USA- http://www.theceliacdiva.com/newly-diagnosed/
Collection of videos about celiac and gluten sensitivity:
Again, these are just a sampling of helpful resources. Feel free to add others below and I’ll see about adding them to this list. Thanks so much and enjoy your new knowledge!