Book Review and Giveaway: “Cilie Yack is Under Attack”

IMG_1757What a fun book.  Cilie Yack is Under Attack, written and illustrated by Caryn Talty is a hilarious chapter book for gluten-free kids. I read the entire thing, myself, for a few days in a row over lunch and actually looked forward to it each day!  My daughters read it together in the car on a road trip, as well… they laughed and read favorite parts of it out loud to us often.  Here are our collective thoughts on the book:

In a nutshell, we all loved it. We won this book through a contest a few years ago and waited a bit for my girls to grow into being able to read it. It’s the only chapter book about Celiac that I know of for older kids, so it definitely fills a need — in a great way.

IMG_1766It’s written from the perspective of a spunky 9 year old boy living in Ireland named Cilie (pronounced “silly”). The book begins with, “This is the story of how one boy turned his problems into a triumph, and how you can, too!” From there the story is told from the point of view of Cilie, and the next 15 chapters are filled with good humor, Irish sayings (explained), cute cartoony illustrations, sidebars (like explanations of Irish football) age-appropriate explanations of Celiac, and off-topic ramblings that are perfect for kids around this age group. You really get an excellent sense of this boy’s character and he is a fun-loving, sometimes misunderstood but totally likeable kid. He never “talks down to you” and kids will love his honesty and openness about feelings of embarrassment, disappointment, excitement and pride.

IMG_1759In the beginning Cilie tells how as a baby his Mum said he was very cranky and “topped both my brothers combined in poop production by the time I was three.” As a young boy he used to act out as class clown and troublemaker, acted wild and out of control whenever he ate gluten, and was mean to his little brothers. His stomach was often upset and he didn’t like to eat, except for his one favorite food “goody” which was bread, milk and sugar. In the chapter called, “Poop Talk” he confesses to all kinds of pooping problems, even a few embarrassing accidents. At age 5, his doctor runs some tests on him and they finally realize it’s Celiac which means a life-long gluten-free diet for him. Once he gets over his initial shock about not being able to eat “goody” anymore, he realizes he’s beginning to feel better and act better as well.

IMG_1760After a while, he writes a great report on Celiac (which is included on 3 pages of the book along with an illustration) by explaining it in his own words, earning himself his first accolades at school. Eventually he starts to feel jealous of not being able to eat certain foods and sneaks some chocolate cake at a party, not long before he “pukes it back up.”

IMG_1758After that his Mum takes him to a special store where they buy lots of gluten-free ingredients to experiment with, and after many flops, finally starts to make some amazing creations in the kitchen. His confidence soars as he figures out new things to eat, and he creates and masters the perfect recipe for carrot cake, which sells out at his football team’s bake sale.

I’ll leave the ending as a surprise, since I’ve already divulged so much, but rest assured your g-free kid will love this book. If he or she is not ready or able to read this alone, I urge you to read it aloud with them so you can share in the laughs.

A word from the author, Caryn Talty:  “This book is written at a 4th grade level as far as vocabulary and readability goes. But the content is geared toward younger kids. I encourage parents to read the book out loud with their kids and talk about what happens to Cilie in the story. I read it out loud with my youngest son at age 5 when he began having digestive problems and was being tested for celiac. He understood the story and celiac disease very well when we finished. We gave donation copies to our kids’ school library and I’ve had kids of all ages come to me to tell me they’ve read the book and enjoyed it. The story is based on some very real experiences my oldest son had before he was diagnosed, but of course Cilie’s story is much more humorous and exaggerated. At the time when my son was sick and symptomatic we did not find much to laugh about. That’s why I decided a few years later that a book like this was important to create. I wanted kids with celiac to relax, understand that they are not alone and it will get better. I also wanted to create a hero out of a kid who seemingly has a lot of weaknesses, or so he thinks. Sometimes being different is magical, especially when you have the right attitude and a little bit of willpower.”

One more note from me:  I took these pictures late at night in a warmly lit room which is why the pages look yellow. However, they are actually white.  🙂

Now for the giveaway: The author has generously agreed to give away 2 copies of this book to 2 lucky winners!  All you have to do is comment below with how your g-free kid might be able to relate to Cilie’s story in this book. Giveaway ends at midnight on Friday, March 7th. Randomly chosen winners will be notified and given 24 hours to respond, or other winners will be chosen to replace them.  U.S. residents only please. Good luck!

If you don’t win, I hope you’ll still buy this book for your g-free kid. It’s currently only $8.09 on Amazon.com and shipping is free if you have Amazon Prime.

Caryn Talty runs the Healthy Family blog which supports “organic living for a healthy family”. Also inspired by this book is the Cilie Yack’s Sous Chef Club.  Check it out!

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[ Disclaimer: We won this book in a contest a few years ago. The opinions I expressed are my own, honest feelings about the book, as well as my daughters’.  ]

Keep coming back for more things for g-free kids, and don’t forget to check out the photo album and kids’ stuff page!

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24 Gluten Free Summer Camps for 2014

I rounded up this list of 24 summer camps (the last 4 are new to this list) which give gluten-free campers the chance to enjoy traditional camp activities without having to worry about what they will eat. It’s the perfect summertime escape from feeling left out or different because they can’t eat what everyone else is having. At these camp sessions, kids’ meals are gluten-free and carefully prepared so that there will be no need for them to ask or to wonder, “Is this safe for me to eat?”

In researching the below list of camps it was interesting to see the various approaches to gluten-free campers. Some camp philosophies celebrate that the kids are gluten-free, while others focus on treating all campers the same except for which meals they receive. Some camps intermingle gluten-free and non-gluten-free kids while other camps have only gluten-free campers and gluten-free food for that particular session. A few camps only allow diagnosed-Celiac kids, so make sure you double check that they also allow kids with wheat allergy and/or non-celiac gluten sensitivity as well. Learn more at the camp links below…

Regardless of how these camps are set up, they all seem like excellent environments for gluten-free kids. The directors and food staff seem very knowledgeable about food preparation safety, and some can even accommodate other special diets such as nut-free, casein-free, etc. They all seem to understand the importance of making kids feel “normal” and making sure their campers enjoy themselves without having to think about their diet.

I remember going to summer camp a few times as a child, and a lot of my memories revolved around foods that we ate there. If I would have known then that I was a Celiac,
I most likely wouldn’t have been able to attend. Now, with these 24 summer camps providing the opportunities that they do, hundreds of
gluten-free children are now
able to enjoy camp activitie
s — horseback riding, canoeing, archery, swimming and countless other activities — free from worrying about their diet. It is exciting to know that the number of camps like these continues to grow, which means even more choices when the time comes for my own daughters to attend one.

So, why not check out the below links and treat your child to an unforgettable adventure this summer!? Registration has already begun for some of these camps, so sign your child up before it’s too late!  Age, cost and registration requirements will vary. Scholarship opportunities and waiting lists are available at some camps.

U.S. gluten-free summer camps  (in no particular order)

 

#1 & #2:  New Jersey Y Camps:
(Nah Jee Wah, Cedar Lake, Teen Camp, and Round Lake)
When:  Gluten Free Family Weekend May 30 – June 1, 2014
Where:  Milford, PA (about 2 hrs from NYC)
For more info:  click here
*These mainstream neighboring camps share a dedicated gluten-free kitchen,
and can accommodate campers on gluten-free diets at any of their mainstream sessions.
These camps have partnered with Celiac Disease Center at Columbia University.

#3:  Camp Fire USA Gluten-Free camp session
When:  July 13 –18, 2014
Where:  Camp Waluhili on scenic Fort Gibson Lake, 45 min. from Tulsa, OK
For more info:  click here and here

#4:  “Free To Be” Camp at Camp Westminster
When:  June 15 – 21, 2014
Where:  Camp Westminster on Higgins Lake in Roscommon, MI
For more info: click here
*Can accommodate the avoidance of other food allergens
such as casein, soy, egg and nuts
.

#5:  Summer Camp Weekaneatit
When:  July 13-18, 2014
Where:  Camp Twin Lakes- Camp Dream in Warm Springs, GA
For more info:  click here

#6:  Gluten-Free Camp
When:  June 29 – July 3, 2014
Where:  Camp Manitou-Lin on Ol’ Lake Barlow in Middleville, MI
For more info: click here and here and here

#7:  The Great Gluten Escape at Camp Gilmont
When:  June 15 – 20, 2014
Where:  Camp Gilmont in Gilmer, TX
For more info:  click here

#8:  Gluten Detective Day Camp
When: July 22 – 24, 2014  •  9am – 3pm daily
Where: Bloomington, MN
For more info: click here
Celiac and all gluten-intolerant kids welcome, as well as their siblings

#9:  Camp Celiac at Camp Arroyo
When: July 21 – 24; July 24 – 27, 2014
Where: Camp Arroyo, Livermore, CA
For more info: click here

#10: GIG Kids Camp West (at Camp Sealth)
When: August 4 – 9, 2014
Where:  Camp Sealth, Vashon Island, WA
For more info: click here and here
*Can accommodate children with both gluten intolerance & diabetes.
*Camp Sealth is peanut-free

#11: GIG Kids Camp East (at Camp Kanata)
When:  July 27 – August 2, 2014
Where:  Camp Kanata, Wake Forest, NC
For more info: click here and here and here

#12: Camp Celiac
When:  August 10 – 15, 2014
Where:  Camp Aldersgate, North Scituate, RI
For more info: click here

#13: Gluten-Free Fun Camp
When:  July 20 – 25, 2014
Where:  Camp Courage in Annandale, MN
For more info: click here

#14: Camp Eagle Hill
Where: Elizaville, NY
For more info: click here and here
Dedicated GF kitchen. Meals are GF versions of other campers’ meals

#15: International Sports Training Camp
Where: Stroudsburg, PA
For more info: Call 570-620-2267 or click here and here
Executive Chef is Celiac and completed Great Kitchens Camps program through NFCA

#16 and #17: Camp Danbee & Camp Taconic
Where: Hinsdale, MA
These two mainstream camps cater to celiac/gluten-intolerant kids during any session.
For more info:  Camp Danbee (girls) or Camp Taconic (boys)

#18: Appel Farm Arts Camp
Where: Elmer, NJ
For more info:  Call 856-358-2472 or click here
Camp chef is certified in gluten-free meal-planning, and gluten-free food is available.

#19: Camp Emerson
Where: Hinsdale, MA
For more info:
  Call 800-782-3395 or click here and here.
Accommodates food-allergic/intolerant and Celiac kids during any session. Separate GF Kitchen Area. Registered Dietician on staff to review menu with each family. Professional Chefs trained in food allergy management and gluten-free meal planning.

#20: Hidden Valley 4-H Camp
Where: Watkins Glen, NY
For more info: http://hiddenvalley4hcamp.org or 607-535-7161
This camp caters to food allergies and other dietary restrictions.

#21: Celiac Strong Camp
When: August 1 – 3, 2014
Where: Comstock Camp, Ithaca, NY
For more info: Email sabrina40154@yahoo.com or click here 
Worry-free weekend for boys & girls ages 8-15. Accommodates both gluten-free and lactose-free diets.

#22: Emma Kaufmann Camp
Where: Morgantown, WV
For more info: click here
Gluten-free meals available at all sessions

#23: Camp Schodack
Where: Nassau, NY
For more info: click here
Gluten-free meals available at all sessions

#24: Camp Wekeela
Where: Hartford, Maine
For more info: click here
Gluten-free meals available at all sessions

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A special “thank you” goes out to all of the people who work so hard to offer these amazing camping opportunities to kids like ours!

Click here to read how gluten-free camps help improve a Celiac child’s well-being, self-perception and emotional outlook:
(Study Shows Special Camp Improves Self-Perception of Children on Restricted Diets)

Click here to read a great article on camps from Living Without (April/May 2011): Postcards from Allergy-Friendly Camp

(Bloggers: please note: this took quite a while to compile. Please be considerate and link back to my site if you’d like to post this resource, instead of copying & pasting this info. Thank you!)
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Has your child attended any of these gluten-free camps before?  Please feel free to comment below about their experience. Thanks!

Book review and giveaway: Barrett’s Unusual Ice Cream Party

IMG_1396Kids love books. Kids who are into dinosaurs or fairies or animals or trucks should have lots of books about those subjects on their bookshelf at home, right? So, alongside other topics of interest, our g-free kids should have children’s books about being gluten-free, too, don’t ya think? The photo above shows about half of a wall of books in my daughters’ room, with 4 of these books in front. Books can be enjoyed over and over, are easily lent to friends & relatives, or brought into school to share with teachers and classmates. What better way for g-free kids to spread awareness and help others understand why they need to be on a special diet than to share their books?

Barrett’s Unusual Ice Cream Party by Michelle L. King is one of an increasingly large number of books that will help children come to terms with the fact that they can still be happy even though they’re on a special diet, work through their feelings on the subject, and help them feel less alone when it comes to watching what they eat…

IMG_1403My 10 year old daughters and I all read this book separately before discussing it together, so here is an honest review of the book from our perspectives…

What this book is like:
Size-wise, this 28-page softcover book is a little under 6″ x 9″ and the computer illustrations are cute and colorful. The story is about a first grader with “celiac sprue” who faces feeling insecure, jealous and angry when friends at school start to question such things as why he had a birthday pie instead of a birthday cake and eats a muffin for lunch instead of a sandwich. When a classmate brings in mouthwatering cupcakes that he can’t have, it upsets him so much that he refuses to go to school the next day. Of course he ends up going, and is happy to meet a confident new friend with a milk allergy. Other kids chime in to say they have asthma, a sister with diabetes, etc. and he realizes being different isn’t so bad. He and his classmates make dairy-free ice cream in class together and by the end he starts to feel less alone, more proud of how he eats, and begins to understand that Celiac is part of what makes him special.

Bonuses:
After the story ends, recipes for Homemade Vanilla-Coconut Ice Cream and Banana Muffins are provided, and a free audio book digital download is also included!

IMG_1406A few minor things:
Overall, my daughters and I liked this book and enjoyed the story. Our biggest qualm is that the back cover reads, “…Barrett learns he has celiac sprue, which means he can’t eat cake and bread or even drink milk.”  Right away my celiac daughter asked why he can’t have milk because he has celiac. I double-checked with the author on this, and the book was supposed to say that he had other food sensitivities besides celiac. Unfortunately her publisher did some last-minute editing that slipped by and they had the final say, so she wasn’t able to make it more clear.  I just felt I should make note of it here because I don’t want newbies to be confused, thinking that milk, eggs and soy (also mentioned once each) aren’t allowed on the gluten-free diet. Please note: These minor issues should not deter anyone with “just” gluten-free kids from buying this book, as there is still a positive message for all kids on special diets, and parents can always clarify. The mention of additional foods might also prove helpful for some kids reading this book…

Our family has always been super positive about being gluten-free, so my girls couldn’t personally relate to the negative emotions the boy showed in the beginning. But, understandably, there are many kids out there who do battle with feelings of jealousy, feeling excluded and just plain mad about not being able to eat like everyone else. I have heard many accounts of this from parents who have gotten in touch with me through this website. If your child has ever felt like this or currently struggles with these emotions, this book will surely be helpful, since it shows how Barrett gets past his negativity and moves on to more productive, healthy feelings about himself and his diet.

To read 13 more reviews on this book from different perspectives, please take a moment to look up Barrett’s Unusual Ice Cream Party on Amazon. Currently it is $8.99 and if you have Amazon Prime, shipping is free!

Now for the giveaway:
The author has generously offered to give away two copies for a giveaway. To win one of these books, please comment below saying why you think your g-free kid would enjoy this book or why it’s important for kids to have books about being gluten-free in their library…

Giveaway ends at midnight on Wednesday, January 29, 2014. If any winners don’t respond within 24 hours, new winners will be picked to replace them. Good luck!  -Katie

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[ Disclaimer: The author sent me a free copy of this book and the opinions I expressed are my own, honest feelings about the book, as well as my daughters’.  ]

Keep coming back for more things for g-free kids, and don’t forget to check out the photo album and kids’ stuff page!

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Supporting the Center for Celiac Research through “Making Tracks for Celiacs”

About this time last year, my family and I participated in “Making Tracks for Celiacs” along with extended family and friends, most of whom join us every year for this event which means so much to us. We have been doing this twice a year for 5 years now — forming a team for the Buffalo walk and going just as a family to the Rochester walk.

2013 is the 12th year for “Making Tracks for Celiacs,” which is an annual fundraising event, organized and managed by the Center for Celiac Research at Mass General. These events around the country have raised almost $2,000,000 to date. The money is used to increase awareness and support research (75% of funds) as well as national and local celiac projects (25% of funds).

This year there are events held in these states: AL, MD, MI, MN, NY and VA, and are usually planned by a local gluten-free diet support group such as the one I belong to.  Check out the main website for “Making Tracks for Celiacs” to learn which cities hold events, which locations are walks versus run/walks, and how you can get involved! Some will be happening soon but others aren’t held until Autumn, which leaves you plenty of time to put a team together — or just enter yourself and/or your own family.

We choose to get a local team together because it is a really great way to show support and love to g-free kids, and it’s important for them to see the “regulars” who attend and donate year after year.  It’s cool to show them how the numbers don’t dwindle off, either — last year we collected the most money we ever have, and had more walkers than any other year, including many who join us annually. My girls know they are not forgotten and that they are backed by many friends and loved ones on their gluten-free journey. It’s something they look forward to every year.

Our team last year was called “Team G-Free Kid” and together we raised $545 to donate to the Center for Celiac Research, along with entry fees paid by over 20 team members. Even though that seems like a lot to us, other “go-getters” have already collected thousands of dollars each for their teams! If you’d like to collect donations (it’s not mandatory) you can easily start your own personal donation page or team page through CeliacWalk.org, and email your friends and family about it. Registration is simple as well. Everything you need to know is in the green column on the lefthand side of that site.

For the first few years, Morgan was the star of our team, but now Lindsey shares the spotlight, too, since she’s been gluten-free for over a year now. We also had a newly gluten-free and casein-free friend (below) and his family join our team for the walk last year, plus dozens of other kids in attendance.

At both of the walks we attend, there is always a ton of stuff for kids to do….clowns, balloon artists, face painting, fake tattoos, stickers, bounce houses, games, local mascots in attendance, special kid goodie bags, story time and all kinds of things. Obviously, different locations will have different activities, but from what I hear, most, if not all, are very kid-friendly.

At this year’s walk, the organizers were also selling these awareness bracelets which support the Center for Celiac Research. For more details on these, please read this post.

There are also a good number of local and national gluten-free food vendors at these events as well, giving out free product samples, coupons and learning material… Many thanks to the generous companies who donate goods towards these walks!

And if the other events are anything like the two we attend, rest assured that you will bring home a crazy amount of gluten-free samples, bars and full-sized product packages. And, if your friends and family are anything like ours, much of their food (from their own goodie bags) will be passed back for your family to enjoy.

All in all, we get a lot out of these walks. When you are among so many other gluten-free folks, there is a huge sense of camaraderie, and you know you are supporting a great cause: celiac disease (and non-celiac gluten sensitivity) research and awareness. Our daughters feel special — especially at the walk where we form a team, and they are always excited about all of the samples they get to try and take home, knowing everything is gluten-free and there’s no need (for once) to question anything. The walk itself is good, healthy family time that you can really soak in and enjoy, knowing that you’re making a difference and that your kids are swelling with pride.

If you are nowhere near any of these walks, you still have three options…
#1: Get some people together and start one (see “How to start your own walk” on CeliacWalk.org) in a new location; #2: Donate online towards the cause; or #3: Try something different: Join Team Gluten Free for any race around the country. How does it work? Read more about one family’s experience here.

Whatever you do, don’t just sit back and let everyone else take action…

As we like to say, “Celiac disease isn’t contagious, but awareness is.
Please help spread it!”

Helping your gluten-free kid gain independence

When your g-free kid reaches a certain age (which is different for every child) it becomes time to start easing them into being independently gluten-free. Here are some tips that will help boost your child’s confidence and know-how:

Teach them to read labels:
For very young kids who don’t know how to read, send along a list of offending ingredients for caregivers, along with a list of naturally GF items such as fruit and raisins. If you’d like your little one to be able to refer to the list, include little pictures of acceptable foods to give him a better visual idea of what’s allowed. Help little ones learn how to spot the words “gluten free”, the certified gluten-free logo or other prominent labels. Once they start to read, you can show them more things to watch for on packages, and to also read the bold allergy warnings at the end of the ingredient list, as in “contains wheat.”

labelsWhen older kids begin looking at packages, the terms “multigrain” and “whole grain” can often be confounding (even for adults) so be sure to explain to them that just reading those words on a package doesn’t mean it is automatically ruled out. My girls used to think that, until I saw their confusion and explained how corn and rice can be considered multigrain or whole grain, too, yet those are still acceptable grains & flours for g-free kids. Teach them that oats need to be certified gluten-free to be considered safe, and other similar tips.

Start label-reading lessons small, by going to Grandma’s house and showing them offending ingredients on labels. Then go home and have them read labels on their own gluten-free products so they can see what is okay.

Guide them through the grocery store:
If your child is old enough and has a long enough attention span, spend some time together in a grocery store (at a slow time of the week) and go through it aisle by aisle, explaining which kinds of food are gluten-free or not. Be matter-of-fact and show them how entire sections of entire aisles are off-limits, but linger in the areas that are full of safe foods and marvel at all of their choices. Show them how most yogurts and ice creams are GF except those with cookies, brownies, sugar cone pieces, etc. Show them all the naturally gluten-free foods and the special area where the gluten-free products are. I do this with my daughters every now and then to test them on what they know, and they, in turn, always love to demonstrate their growing knowledge.

If this sounds too overwhelming for a younger child, then just do it in small doses on a regular basis as you do your weekly shopping together. It may take some time, but it’s very beneficial for your child — and something to be proud of  — for them to be able to show you what he or she knows.

Let them speak up for themselves:
When eating out, kids of all ages can learn to speak up for themselves to varying degrees. Young kids can learn how to ask, “Is this gluten-free?” or “Is this safe for me to eat?” Let your child order for themselves in a restaurant and have them politely inform the waitstaff that their meal needs to be gluten-free. Even if you plan on discussing details with the waitress, manager or chef yourself (which I would advise in order to avoid cross contamination) it is important for your child to get in the habit of always making sure people know that he or she needs to eat g-free.

menuIf your child is old enough, test them to see if they can correctly name the gluten-free options on menus at restaurants by themselves. Explain why they can’t eat certain things like french fries, which are deep fried in shared fryers with gluten-containing foods like breaded chicken fingers. Let them ask if there is a dedicated fryer or not. The older a child gets, the more he or she needs to have these habits set in place. The more they practice, the more comfortable they will get with the necessary dialogue. Your child will be filled with pride as he learns these life-long social lessons.

Can you think of any more ways to help your g-free kid gain independence? Please comment below if you have anything to add…..thanks!

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22 Gluten Free Summer Camps for 2013

I rounded up this list of 22 summer camps which give gluten-free campers the chance to enjoy traditional camp activities without having to worry about what they will eat. It’s the perfect summertime escape from feeling left out or different because they can’t eat what everyone else is having. At these camp sessions, kids’ meals are gluten-free and carefully prepared so that there will be no need for them to ask or to wonder, “Is this safe for me to eat?”

In researching the below list of camps it was interesting to see the various approaches to gluten-free campers. Some camp philosophies celebrate that the kids are gluten-free, while others focus on treating everyone the same except for which meals they receive. Some camps intermingle gluten-free and non-gluten-free kids while other camps have only gluten-free campers and gluten-free food for that particular session. I have heard that a few camps only allow diagnosed-Celiac kids, so make sure you double check that they also allow kids with gluten allergy and/or non-celiac gluten sensitivity as well. (I can’t imagine telling my one daughter she couldn’t attend because her gluten-free condition was not deemed as worthy as her sister’s!)  Learn more at the camp links below…

Regardless of how these camps are set up, they all seem like excellent environments for gluten-free kids. The directors and food staff seem very knowledgeable about food preparation safety, and some can even accommodate other special diets such as nut-free, casein-free, etc. They all seem to understand the importance of making kids feel “normal” and making sure their campers enjoy themselves without having to think about their diet.

I remember going to summer camp a few times, and a lot of my memories revolved around foods that we ate there. If I would have known I was a Celiac when I was a child, I most likely wouldn’t have been able to attend. Now, with these 21 summer camps providing the opportunities that they do, hundreds of gluten-free children are now able to enjoy camp activities — horseback riding, canoeing, archery, swimming and countless other activities — free from worrying about their diet. It is exciting to know that the number of camps like these continues to grow, which means even more choices when the time comes for my own daughters to attend one.

So, why not check out the below links and treat your child to an unforgettable adventure this summer!? Registration has already begun for some of these camps, so sign your child up before it’s too late!  Age, cost and registration requirements will vary. Scholarship opportunities and waiting lists are available at some camps.

U.S. Celiac summer camps  (in no particular order)

#1 & #2:  New Jersey Y Camps: Nah Jee Wah & Cedar Lake
When:  Gluten Free Family Weekend May 31 – June 2, 2013
Where:  Milford, PA (about 2 hrs from NYC)
For more info:  click here
*These mainstream neighboring camps share a dedicated gluten-free kitchen,
and can accommodate campers on gluten-free diets at any of their mainstream sessions.
These camps have partnered with Celiac Disease Center at Columbia University.

#3:  Camp Fire USA Gluten-Free camp session
When:  July 21 – 27, 2013
Where:  Camp Waluhili on scenic Fort Gibson Lake, 45 min. from Tulsa, OK
For more info:  click here

#4:  “Free To Be” Camp at Camp Westminster
When:  June 16 – 22 , 2013
Where:  Camp Westminster on Higgins Lake in Roscommon, MI
For more info: click here
*Can accommodate the avoidance of other food allergens
such as casein, soy, egg and nuts
.

#5:  Summer Camp Weekaneatit
When:  June 23 – 28, 2013
Where:  Camp Twin Lakes Will-A-Way in Winder, GA
For more info:  click here

#6:  Camp Gluten Freedom
When: June 25 – 28, 2013
Where: Camp Jameson, Indianapolis, IN
For more info: click here

#7:  Gluten-Free Camp
When:  June 30 – July 5, 2013
Where:  Camp Manitou-Lin on Ol’ Lake Barlow in Middleville, MI
For more info: click here

#8:  The Great Gluten Escape at Camp Gilmont
When:  June 16 – 21, 2013
Where:  Camp Gilmont in Gilmer, TX
For more info:  click here

#9:  Gluten Detective Day Camp
When: July 23 – 25, 2013  •  9am – 3pm daily
Where: Bloomington, MN
For more info: click here
Celiac and all gluten-intolerant kids welcome, as well as their siblings

#10:  Camp Celiac at Camp Arroyo
When: July 23 – 27; July 27 – 31, 2013
Where: Camp Arroyo, Livermore, CA
For more info: click here

#11:  Celiac Disease Foundation (CDF) Camp Gluten Free
When: July 15 – 19, 2013
Where: Camp Nawakwa, CA
For more info: click here

#12: GIG Kids Camp West
When: July 31 – Aug. 5 ; Aug. 6 – 9; July 31 – Aug. 9, 2013
Where:  Camp Sealth, Vashon Island, WA
For more info: click here and here
*Can accommodate children with both gluten intolerance & diabetes.
*Camp Sealth is peanut-free

#13: Gluten-free week at Camp Kanata (GIG Kids Camp East)
When:  August 4 – 10, 2013
Where:  Camp Kanata, Wake Forest, NC
For more info: click here and here

#14: Camp Celiac
When:  August 11 – 16, 2013
Where:  Camp Aldersgate, North Scituate, RI
For more info: click here

#15: Gluten-Free Fun Camp
When:  July 14 – 19, 2013
Where:  Camp New Hope in McGregor, MN
For more info: click here

#16: Camp Eagle Hill
Where: Elizaville, NY
For more info: click here and here
New for 2012: dedicated GF kitchen. Meals are GF versions of other campers’ meals

#17: International Sports Training Camp
Where: Stroudsburg, PA
For more info: Call 570-620-2267 or click here
Executive Chef is Celiac and completed Great Kitchens Camps program through NFCA

#18 and #19: Camp Danbee & Camp Taconic
Where: Hinsdale, MA
These two mainstream camps cater to celiac/gluten-intolerant kids during any session.
For more info:  Camp Danbee (girls) or Camp Taconic (boys)

#20: Appel Farm Arts Camp
Where: Elmer, NJ
For more info:  Call 856-358-2472 or click here
Camp chef is certified in gluten-free meal-planning, and gluten-free food is available.

#21: Camp Emerson
Where: Hinsdale, MA
For more info:
  Call 800-782-3395 or click here and here.
Accommodates food-allergic/intolerant and Celiac kids during any session. Separate GF Kitchen Area. Registered Dietician on staff to review menu with each family. Professional Chefs trained in food allergy management and gluten-free meal planning.

#22: Hidden Valley 4-H Camp
Where: Watkins Glen, NY
For more info: http://hiddenvalley4hcamp.org or 607-535-7161
This camp caters to food allergies and other dietary restrictions.

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A special “thank you” goes out to all of the people who work so hard to offer these amazing camping opportunities to kids like ours!

Click here to read how gluten-free camps help improve a Celiac child’s well-being, self-perception and emotional outlook:
(Study Shows Special Camp Improves Self-Perception of Children on Restricted Diets)

Click here to read a great article on camps from Living Without (April/May 2011): Postcards from Allergy-Friendly Camp

(Bloggers: please note: this took quite a while to compile. Please be considerate and link back to my site if you’d like to post this resource, instead of copying & pasting this info. Thank you!)
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Has your child attended any of these gluten-free camps before?  Please feel free to comment below about their experience. Thanks!

School Presentations Help Teach Classmates About Celiac Disease

When a new school year rolls around, how do you make things as easy as possible for your g-free kid? How do you make peers and a new teacher understand why your child has to be on a special diet?  It is helpful for a child if people are understanding and sympathetic (in a positive way) of why he or she is on a restricted diet and not able to eat certain birthday treats that are sent in, etc.  One option is to write and send everyone letters and lists and hope that they read and understand everything you’re alerting them to. A better option is to get right in there yourself — with a simple classroom presentation — and teach them what Celiac and the gluten-free diet are all about. That is what Erin A. did for her daughter, Eilea, and we both hope that her positive experience provides inspiration for more parents to follow suit.

Erin is one of those stand-out Moms I have met online — through g-free kid’s website, Facebook page and by email. Erin first got in touch with me when she sent in her daughter’s photo for the g-free kids’ online photo album, and one of the things she mentioned was a classroom presentation she was putting together. I could already tell she was an amazing advocate for her gluten-free kid, so I asked her to let me know how it went. I hope you enjoy her summary and photos below. She writes:

“My daughter and I were first inspired by the “Super Celiac costume that you created for your daughter, Morgan, last Halloween. I made a similar costume for my daughter, Eilea, who enjoyed choosing her favorite colors of material and gemstones to decorate the costume with. She also wore one of the Tribandz awareness bracelets to complete her ensemble.

I then took it a step further and decided to make a presentation to my daughter’s first grade class, to let them know a little about Celiac and being gluten free. As I was thinking about what to do, I realized that most of the information that Eilea and I wanted to share with the kids was included in the children’s book, “Mommy, What is Celiac Disease?” so I decided to make it the focus of our presentation.

I first got in touch with my daughter’s teacher to arrange the presentation date and time. (A presentation like this might take all of 15 minutes, give or take, so it should be easy enough to fit it in).  When it came time to make the presentation, Eilea was excused from class for a few minutes so I could help her put her costume on over her school uniform.  Eilea then waited in the hall until I gave her the signal to come in.

I went back into the classroom and helped the teacher gather the kids around for the presentation.  I pretended to wonder where Eilea was, then decided to start without her, welcoming the kids and thanking them for letting us share this information.  Eilea came in the room then and I said, “It’s a bird, it’s a plane, it’s SUPER CELIAC GIRL!!”

Eilea came to sit next to me and we proceeded to read, “Mommy, What is Celiac Disease?” together to the class.  (The book is written with a dialogue so that a parent can read their lines and a child can read theirs, too, if you wish to read it aloud together.)

When we finished the book, we answered any questions the kids had and helped explain some of the things in the book.  Everyone particularly liked the part where the grass being flattened down is like the villi in her intestines.

Super Celiac Girl then served some gluten-free snacks to her classmates and teacher.  Everyone was able to enjoy a small Dixie cup full of Snyder’s GF Pretzels, Annie’s GF Snickerdoodle Bunny Snacks and Annie’s GF Chocolate and Vanilla Bunny Snacks.  The snacks got rave reviews, especially the Snyder’s pretzels.

I also created a handout for the kids to read over and bring home to share with their parents about Celiac disease and being gluten free, which Eilea proudly handed out to her classmates.

The presentation was a hit, Eilea felt so special being the center of attention, and her peers and teacher learned a lot about Celiac and the gluten-free diet through the book, our Q&A session and the handout. It was totally worthwhile.

We hope that we’ve been able to help spread awareness about Celiac and the gluten-free diet. This year I also plan to give all of her teachers a letter explaining her diet and the need for diligence in keeping her snacks safe.  She’s very good about not eating something questionable but we can use all the help we can get.  I’m planning on leaving a box of non-refrigerated GF snacks that can be left in the classroom for those unexpected treat days.  I also plan to communicate with the teacher in order to get a list of birthdays and planned celebrations so that we can be ready with treats when they’re needed.”

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Many thanks to Erin for sharing her experience. Please comment below if you have done something similar for/with your g-free kid — or if this gives you just the push you needed to get out there for the first time and do it yourself!  🙂  You can do it, and your child will thank you for it!

As we like to say,
“Celiac disease isn’t contagious, but awareness is. Please help spread it!”

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Please note:  As a mom of a daughter with Celiac and another daughter with non-celiac gluten sensitivity (NCGS) I also believe that helping spread awareness of the latter condition is equally as important as Celiac. Just because your g-free kid is GF for reasons other than Celiac doesn’t mean you couldn’t hold a presentation like the one above. There are a number of other children’s books (that don’t focus on Celiac disease) that you could use instead. The most important thing is that you are helping those around your g-free kid to better understand why he or she is on a special diet. I will continue to try to fill this website with helpful resources that will allow you to do just that. Thanks for the support.